Today's post from thebody.com (see link below) is one person's horrendous experience with Oxycodone/Oxycontin having been prescribed to suppress the pain of neuropathy. The lesson here is that you need to think very carefully before beginning any forms of opioids and discuss all the pros and cons with your doctor. It may be unavoidable, if opioids are the only options left open to you to make life bearable with neuropathy but then you need to insist that your doctor(s) monitors you carefully for signs of addiction and severe side effects. All too often, people are sent away with a prescription in hand and left to cope on their own; that's no longer acceptable because addiction to Oxycodone is no joke and trying to wean yourself off it is as hard as weaning yourself off any hard drug. All that said; if opioids are your only option (and for many people that it the case at the moment) then they can help - they just need to be treated with the greatest respect and your progress needs to be watched carefully.
HIV/AIDS, Neuropathy, Painkillers (My Personal Hell)
By Maria T. Mejia January 21, 2011
This article was cross-posted from "A Girl Like Me," a program of The Well Project.
Well, where do I start!? I guess pain ... physical and mental. One of the
situations that we face with HIV/AIDS is pain ... from neuropathy, aging, etc.,
etc. I myself was on pain medication -- exactly, Oxycodone. Well, 8 years ago
when one of the doctors I saw prescribed it to me, he never told me how
addictive it was!!! I wish I knew then what I know now!! I have suffered
sometimes more with this little pill than with the HIV/AIDS virus ... that, by
the way, I started with half a pill (5 mgs) and ended up with maybe taking 80
mgs a day! This is over an 8-year period as I said. You see, this pill comes in
different forms. Names I know: Morphine, roxycodone, oxycodone, oxycontin,
codeine, tramal, percodan, etc., etc.
WHY did this doc put me on a medication that seems like heroin but in
pills??? That's highly addictive?? I get so angry with the hell I have been
through. Thank god I have not ended like many of the people I know and always
had the strength and WILL to not take as many as I know some people that started
just like me. I mean, they are taking up to 20 pills or more a day! Of course,
this medication causes dependency, which means if you don't take it every day,
you go through withdrawl like from heroin. :( Not everyone can do what I have
done and stop cold turkey, on my own; I have gone through like 100 flus and feel
odd and weird. My brain is still in the process of healing itself from this
narcotic. Don't get me wrong, I know some people have so much pain from
different things and it's something that they need because the pain is too much!
And then in a case like that, they have to take this strong narcotic. I just
wish that doc would have told me more about what he was giving me! And maybe
started me off with pain meds that DO NOT have opioids, alternative treatment,
etc., etc. That's why I urge everyone: always keep yourself educated and when
the doctor prescribes you anything ask questions and not only that, research!
research! research!!
Here is a little info on OPIOIDS: http://opioids.com/. Anyway, a lot of
people with HIV/AIDS have, at some point, depression and anxiety ... so not only
does this medication take away your pain but it makes you NUMB emotionally. At
the start it's good, you're ok ... you may even throw up but it takes away the
pain ... but then you find yourself in this HELL ... because what you started
taking is not enough and you have to take a little more and more or you get what
is called DOPE SICK. Imagine that ... I was never a drug addict and because my
brain wanted more I am DOPE SICK now??? It's just amazing how this thing got me.
But I beat it. I'd rather live taking ibuprofen and getting massage therapy than
go back on those things!
You know what is IRONIC? That this medication is for pain and if you don't
take it, it gives you more pain! Imagine that. So basically, my brain is telling
my body take more. So where would I be 10 years from now??? Like many of my
friends that were doing well with HIV/AIDS, and now they are dead because they
overdosed. I had the need to let everyone know about this. I don't know the
names of pain medications they may use in other countries in the world, but if
you have PAIN ... ask what are the components and if it is addictive.
Well all I can say is I am free from this DEMON for today ... I take it one
day at a time :D ... .and again I am not saying if you are at a point you can't
walk or your quality of life is bad and you need this to walk, function, etc.,
etc. ... but not my case! I needed it to function but more because I was
addicted and had a dependency that a doctor never explained to me ... or said be
careful with this narcotic ... Look how many people are dying from prescription
medications! Well NOT me. If HIV/AIDS has not killed me in 20 years ... these
pain killers sure will not! I chose to LIVE!
LOVE AND LIGHT
MariaTeresa
Note: The Well Project advises any changes (stopping or starting) in
medication to be discussed with a health care provider.
http://www.thebody.com/content/art60221.html
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