Today's short post from neuropathyresources.com (see link below) is one that many people living with severe neuropathy will recognise. It concerns how you, the pain sufferer, appear to others and although there's little you can do about it, it's good that someone puts this into words. Useful for friends and family to read and hopefully they will understand what you're going through a little better.
Never-Ending Pain
David Dakroub 6th october 2014
I want to explain what it is like to live with the type of nerve pain so common among individuals suffering from a neurological disorder. It is a hard to describe accurately without experiencing it yourself. This is because it is not just about the pain. It is also because the pain is relentless. It does not to ever seem to take a break, thereby leaving the sufferer bug-eyed and weary. This is horrible mental distress as much as physical.
The trickle down effect from the nonstop pain also spiders out into every facet of your life. Every relationship is different because of the difficulty it takes to communicate. It is like trying to carry on a conversation in a loud crowded subway. You must strain to hear what is being said to you with the screeching sound of pain trying to constantly interfere with the conversation. You will often be misunderstood by others as being uncaring and rude because of this.
The work you are trying to accomplish, at home or on the job, is disorganized and incomplete. Whatever you seem to do lacks any joy or sense of accomplishment. People misjudge you as being a poor or sloppy coworker. They wonder why you always look tired; they fail to realize the toll that pain is taking on your sleep.
The individual with this kind of pain has cluttered thoughts; he or she seems to live in a fog that will not clear. This person is tired of explaining himself because he knows it will do no good. After a repeated number of occurrences with people minimizing his attempts to explain his pain, he just keeps it all in. There is nobody in his life--coworkers, doctors, spouses, family, or friends--realizes he thinks of ending the pain everyday. There is not one person who would even understand this; nobody would understand why he feels like he is all alone in this world.
http://www.neuropathyresources.com/
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