Two short stories today, both from the USA where they certainly suffer more from the ripple effects of neuropathy than in countries where there is a social safety net. Sometimes posts need no further comment from me.
Gerald' storyhttp://www.experienceproject.com/stories/Have-Small-Fiber-Peripheral-Neuropathy/1560374
A Lack of Understanding Neuropathy has Changed My Life
I'm a 40 year-old man whose wife left him last year due to complications from neuropathy and her not understanding what I was going through. I lost my job, just one week before Christmas, from complications from this disease!
I'm aggravated with it! I've done all the testing and still don’t know why I have it! I'm currently on oxycodone and acetaminophen for the pain and have been for years. I go up and down on the daily doses, so they still help me about 20%, just enough to be able to function as a adult. The misconceptions about this drug alone are devastating to me because no one understands.
I have a long life to live still; but my neuropathy seems to get worse at all the wrong times, and not many people understand what I am experiencing. The main thing that has helped me the most is God, and, yes, I am a born-again Christian!
Thanks for allowing me to share a little bit of my story. I would like to share my whole story one day. Thank y'all!
http://www.neuropathy.org/site/News2?page=NewsArticle&id=7625
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Neurotyke's tale
Posted May 14th, 2011 at 1:03PM
I'm 29. I've been trying to deal with this crap since I was 21.
My "ideopathic" cause is more than likely trauma to the tendons in my ankles.
I was in the Navy, joined up to be in the Seabees.
The physical training for the Seabees was a lot like being a Marine, with a specialty in construction.
I'm a tough guy and stubborn as hell. I made it through basic Navy boot camp during a Chicago winter with strep throat, a chest cold and a severe ear infection. (No joke. A petty officer almost had to escort me to get checked out by a doctor. I didn't want to get held back in training.)
When it comes to pain, I can handle a lot of it.
Until my feet felt like the tendons were tearing away from the bone every time I ran.
I was medically discharged with bilateral Plantar Fascitis and Tibial Tendonitis. Service connected.
I thought that I'd get better and then be able to join back up and maybe be a deck hand instead.
Then my feet started burning at night and I thought my feet would explode from all the pressure building up.
You all can relate with the symptoms.
Medications: Nortryptolene, Gabapentin, and Tramadol.
Gabapentin's side-effects cost me my last job.
Jury's still out on the other two.
I'm planning on becoming a paralegal. Work my way up to a Soulless Corporate Lawyer.
I hereby refuse to let the ideopathic peripheral small fiber neuropathy ruin my life.
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