Finding the most reliable and up to date news and information about neuropathy can be an important tool in the arsenal of anyone dealing with the painful symptoms of peripheral neuropathy. In today’s world, we’re lucky to have a wealth of information at our fingertips via the Internet.
Unfortunately, as many neuropathy sufferers have discovered, navigating the sea of information about peripheral neuropathy on the Internet can be a monumental task. The time consuming process of sorting through the thousands of websites, blogs and articles (and weeding out the bad ones) is both tedious and cumbersome.
With that in mind, we’ve compiled a list of some of the top organizations and websites for finding reliable news and expert information about neuropathy to empower you with the knowledge you need to make informed decisions about your treatment.
The Foundation for Peripheral Neuropathy
Website: http://www.neuropathy.org/
The Foundation for Peripheral Neuropathy is a charitable organization dedicated to educating both the public and medical professionals about peripheral neuropathy. Their mission statement states that they aim to “be the catalyst for advancing innovative therapeutic developments and accelerating a cure for painful neuropathies by funding collaborative efforts of leading scientists and physicians. We will strive to raise awareness of peripheral neuropathy through outreach programs to patients, their families and healthcare professionals.”
The foundation’s website is full of relevant information and articles ranging from the basics of neuropathy to more in depth articles for how to cope with the painful condition. While most of the content on the website is free, they also offer a premium membership (for $2.50/month) which gives members exclusive access to educational videos, news, tips and more.
Neuropathy Support Network
Website: https://neuropathysupportnetwork.org
The Neuropathy Support Network is a nonprofit dedicated to supporting the implementation of the missions of all organizations reaching out to raise awareness and hope to all neuropathy patients. In addition to relevant articles and information for those suffering from neuropathy, they also have useful directories for finding doctors and neuropathy support groups in your area.
American Chronic Pain Association
Website: http://www.theacpa.org/
The mission of the American Chronic Pain Association is two-fold. First, they try to facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain. Second, they hope to raise awareness among the health care community, policy makers, and the public at large about issues of living with chronic pain.
While not focused solely on neuropathy, the American Chronic Pain Association has a wealth of useful information and resources for neuropathy patients. We especially like the downloadable and interactive tools they offer in the neuropathic pain section of their site. One of our favorite tools is a downloadable form that you can fill out and bring to your first visit to help you make the most of your first visit with your doctor about your nerve pain.
Neuropathy Action Foundation
Website: http://www.neuropathyaction.org/
The Neuropathy Action Foundation is a nonprofit dedicated to ensuring neuropathy patients obtain the necessary resources, information and tools to access individualized treatment to improve their quality of life. The Neuropathy 101 section of the NAF website offers a thorough overview of symptoms, potential causes and available treatments for neuropathy. For those newly diagnosed with neuropathy, this can give a useful overview of what you are facing and what to expect.
National Institute of Neurological Disorders and Stroke
Website: http://www.ninds.nih.gov/
The mission of the National Institute of Neurological Disorders and Stroke is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease. Their research covers a wide range of neurological disorders, including peripheral neuropathy and diabetic neuropathy.
Diabetes Daily
Website: http://www.diabetesdaily.com/
An estimated 70% of diabetes patients will develop neuropathy. For those suffering from diabetes-induced neuropathy, websites like DiabetesDaily.com can be a valuable resource for learning how to cope not only with the symptoms of neuropathy, but also for managing diabetes. Among the many articles and assets on their website, we’ve found their eBooks and Recipes sections to be extremely useful. In addition to that, they also have forums where you can connect with fellow diabetics and neuropathy patients and discuss a variety of topics.
Diabetes Support (Facebook)
Facebook Pg: https://www.facebook.com/Diabetes-Support-119703998103102/timeline/
The Diabetes Support Group on Facebook is a community of over 900k users who are, in one way or another, affected by diabetes. For neuropathy patients who also suffer from diabetes, the page offers an easy way to get daily tips, articles and information related to diabetes. You can also connect with others and learn valuable information and tips to help you in your own journey with diabetes.
American Diabetes Association
Website: http://www.diabetes.org/
The American Diabetes Association should be a go-to source of information for anyone suffering from neuropathic pain as a result of complications from diabetes. Their mission is to stop diabetes and the complications that can arise from it. You’ll find a vast array of resources on their website for those suffering from diabetic neuropathy, including tips to prevent or delay nerve damage.
Power of Pain Foundation
Website: http://powerofpain.org/
The Power of Pain Foundation’s mission is to educate and support chronic pain patients, specifically those with neuropathy pain conditions. You’ll find useful information about neuropathy as well as blog posts covering a variety of pain related topics. They also offer free downloadable symptom bookmarks, which are bookmarked sized facts sheets you can carry around for easy reference of the common symptoms associated with various chronic pain conditions like neuropathy.
Patients Like Me
Website: https://www.patientslikeme.com/conditions/329-peripheral-neuropathy
Patients Like Me is a free website where users with similar conditions can compare their symptoms and treatments as well as gain access to valuable data and trends relevant to their condition. We like this website because you can see what others with peripheral neuropathy are experiencing and how effective different drugs are for treating their symptoms. Users can rate the perceived effectiveness of the medications they’ve tried as well as report on the types of side effects experienced and their severity. PatientsLikeMe.com then takes this information and compiles it into easy to read graphs to help you understand what others are experiencing.
Finding the best information available online can help point you in the right direction as you try to understand the symptoms, causes and treatments for your neuropathy. The quicker you can find this information, the quicker you can be on the path to more manageable pain levels and more effective treatment. What have been the most valuable resources for you, as you’ve had to learn about neuropathy? Share your experiences with us on our Facebook Page!
http://www.neuropathytreatmentgroup.com/neuropathycream/10-resources-every-neuropathy-sufferer-should-bookmark
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