Three short posts from the blog: Diabetic neuropathy: What's it all about hey!(see link below) which is an honest and plain-spoken, account of a diabetic patient's experiences with neuropathy. This site gives you a little more than the average 'health' blog and gives you that comfortable feeling that you can relate to his life on various levels. He is is a diabetic with neuropathy and not HIV but this is a case where neuropathy is, in the end, just neuropathy whatever other ailment you have at the same time and shared experiences can often be very helpful in helping you deal with what's happening in your own life.
Seen my doc Sept.24th 2009http://diabetes-and-neuropathy.blogspot.com
Went to see my consultant yesterday.. talked about the how there is no support network for neuropathy sufferers.. he gave me a few pointers and has given me more motivation to get something started for people like me..
I also went to see a gastroenterology doc today..i am on 2 diff sets of antibiotics for the next month to see if that can ease the stomach problems.. sometimes when the stomach does not empty properly bacteria grows and adds to the situation... there is a common theme though when i see a consultant...
"its difficult to test for that" or we dont have a test for that" "or there is not much we can do about that"
but i am not giving up just yet anyway!!
oh the pain Feb 8th,2011
i find it really hard to explain the pain.....
just cause i do not cry n scream does not mean i am not in pain
after suffering with extreme pain for 3 years now its not about a pain free day its about how strong the pain is.... if that makes sense...
so i am never without pain... but the levels just increase or decrease and it something your body HAS to get used to....
today was a day of well i want to cut my feet off days...... and those of you who understand know... i was in asda.. and had to lay on the floor as my feet were so bad i could not even stand anymore... let alone walk... and pushing the trolley.. if i was not with JO i would have just left the trolley and left... ....
now as i write this,... is am fine n dandy.... but 3 hours ago...................
well give me a saw... and leave me alone..... and it would have been a diff story
just cause you cant see my pain does not mean i am not crying inside with agony.......
depression ... stress.. the invisible thing.... Nov.4th,2010
i have written about this before.... i am no doctor and no expert.. but i can only talk about what i have experienced and what i have seen...
depression and stress are conditions that are very difficult to understand... very much like having nerve pain... it exists.... but its hard to treat.. and hard to explain.. and everyone deals with it in their own way... some have drugs.... some dont... some get angry... some go quiet... there is noo right or wrong way... but.. this is know... ignore it and it will consume you and it will affect you and everyone around you... so find your way... dont be afraid to talk about it... do`nt be afraid to ask for help.... if you break your leg do you get it sorted... yes and over time it will heal... if you dont will heal wrong and be crocked and painful for the rest of your life.....
from someone who used to clam up.. and try and deal with things himself.. from being too proud to ask for help... to burying my head in the sand for along time... the thing i did was be open about it all and learn how to talk about it all... whether it be my "man Issues"... or temper.. or not being able to cope with the pain....
i mean i am talking to myself now... this is how i deal with it ... we are all different.... but no matter how you deal with it... you are not alone in this...
i have said this for a while now... "DONT SUFFER IN SILENCE"
you are not alone....
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