Living Life with Peripheral Neuropathy
Monday November 7th 2011
Living life with peripheral neuropathy has been a
challenge for sure! I never would of thought that my life would revolve around
being in chronic pain 24/7. One day I was in great health and the next it was
all taken away from me in Jan 2001. Before all this I had never heard of
peripheral neuropathy so when I was told that this was my diagnosis and it was
permanent with no cure I just about lost it! I remember thinking how can no cure
be available and no specific medicine for neuropathy be available. When my
neuropathy symptoms first started it came on strong and on a pain scale the pain
was a 10 and still is, but controlled with medications/narcotics. So now my life
also revolves around being on heavy narcotics and this is someone who never took
anything besides a asprin before all this! Even with being on heavy narcotics I
still have pain and some days are very bad! I take medicine that is given to
cancer patients and still can't get pain control on some days. That is just
crazy to me and something has to be changed! We need help spreading the word
about PN so a cure can be found. No one should have to live there life in
chronic pain! No one can understand what its like to live like this unless they
have it personally. It takes over your mind and controls everything you do from
spending time with family or friends. It follows you everywhere and is always a
constant reminder that you have PN. As bad as my life can be with having PN I
have found its the little things that can make me happy. Little things like the
smell of a flower or watching a new flower grow, enjoying my morning coffee, my
fragrant candles, a new recipe etc and best of all being a great mom! I have had
time over the years to accept this is the new me and its how it is. Of course I
have days that I get depressed, but I try and think tomorrow will be a better
day! I'm so glad to have the support from the group called Support for
Neuropathy that I joined on facebook. For about 9 out of the 11 years of having
PN I had no support and it was very lonely. I have meet many caring and awesome
friends in my support group and I'm very thankful to have them all!!
Written by Michelle Cornell Monroe, Support for Neuropathy member
Written by Michelle Cornell Monroe, Support for Neuropathy member
I have had pn for over 5 yrs, it started with my feet fealing like they where in cement boots. No Dr could diagnose the cause. I went into. the hospital they found I had AIDS, my level was higher then just hiv. The told me my np was due to AIDS...So now hiv is nondetecable but np. is still here and pain. is controlled with pain killers..but. left in a wheelchair....with little hope of getting ot of it. So health and unable yo enjoy life.
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